tag:blogger.com,1999:blog-8432201620927412756.post4249788847199270584..comments2020-08-09T23:56:19.312-07:00Comments on Grace Notes: How Do You Solve a Problem Like.........Melaniehttp://www.blogger.com/profile/00588596555735670176noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-8432201620927412756.post-50929575772606893672012-02-17T08:44:26.264-08:002012-02-17T08:44:26.264-08:00I have a little boy whose apraxia of speech is ver...I have a little boy whose apraxia of speech is very mild. . . but you should not be fighting your insurance over this - if Millie is three, then your local school district should be providing speech services for her and, basically, any other PT/OT she needs for her sensory issues - try Easter Seals if you have one in your area, for advice and guidance - but I would definitely contact your county's regional board of education and find out where/when/how to have her screened and get an IEP in place to provide services. (Even if you homeschool, they provide services.) Just my .02-cents - as a mom of a kid with apraxia and a former school board member.Jenniferhttps://www.blogger.com/profile/04146641116542160830noreply@blogger.comtag:blogger.com,1999:blog-8432201620927412756.post-86531909820090738052012-02-16T14:20:06.573-08:002012-02-16T14:20:06.573-08:00Our speech therapist introduced our son to a dynav...Our speech therapist introduced our son to a dynavox type device 6 weeks after his stroke when she took over his care. He lunged for it, he knew what it was, and he was desperate to communicate. It had a large screen and was very simple to use. He had mainly been communicating through sign language(which he taught himself)since the stroke. Although his is Brocas Aphasia there are a lot of similarities. Good luck!Melissahttps://www.blogger.com/profile/15698048718456255433noreply@blogger.comtag:blogger.com,1999:blog-8432201620927412756.post-75072296944453788842012-02-16T11:48:59.016-08:002012-02-16T11:48:59.016-08:00I also just came to your site from RR and want to ...I also just came to your site from RR and want to say congratulations as well! I love Spencer!<br /><br />My own Spencer is also a sensory seeker, diagnosed as autistic (though he doesn't really fit that diagnosis any more, more like ADHD with a speech delay), and we discussed the possibility of apraxia with his SLP a couple of years ago, though he was never officially diagnosed with it. I definitely concur on the acting out because of the lack of ability to communicate -- we had the exact same issue, and his tantrums, etc have gotten _so_ much better as our ability to communicate has gotten better. I don't want to try to list all the things we've tried, what's worked and what hasn't, what we're currently doing, etc in a blog comment, but your Millie sounds a lot like my Spencer (just a few years younger), and if you ever want to chat, I'd love to! You can e-mail me at evansadoption@gmail.comKatiehttps://www.blogger.com/profile/09165488839239946461noreply@blogger.comtag:blogger.com,1999:blog-8432201620927412756.post-57585625847811371652012-02-15T17:31:45.238-08:002012-02-15T17:31:45.238-08:00I came to your blog from the Reece's Rainbow s...I came to your blog from the Reece's Rainbow site---congratulations on your upcoming adoption of Spencer!!<br /><br />Our son had severe speech delays and apraxia and autism were both thrown around as possible diagnosis. He had neither and therapy for either would not have helped. What has helped him more than anything else is using Dr. James MacDonald's communicating partner techniques---he has a great book called Play to Talk and is very active on a yahoo group! An amazing man with a huge heart for any language delayed child. His ideas will definitely help you with your other kids too!Ruthieshttps://www.blogger.com/profile/02664883500287284970noreply@blogger.comtag:blogger.com,1999:blog-8432201620927412756.post-23903062128903078452012-01-08T09:26:14.744-08:002012-01-08T09:26:14.744-08:00Some assistive speech devices, such as dinovox, ca...Some assistive speech devices, such as dinovox, can open up the world for kids who don't have speech. Some of them are very simple and can "grow" with a child's needs. These types of devices have a great range in price. Go check them out online - I can't tell you the difference I have seen these make for kids who can't access speech. You can even go on Youtube and see videos of kids with different disabilities using ASD's. Good luck!lisahttps://www.blogger.com/profile/02237768738313481490noreply@blogger.comtag:blogger.com,1999:blog-8432201620927412756.post-25492742345776356932012-01-05T10:07:42.678-08:002012-01-05T10:07:42.678-08:00Melanie, I was looking around on the internet and ...Melanie, I was looking around on the internet and found this article. <br /><br />http://www.speechlanguagefeeding.com/seventy-percent-apraxia-cases-wrongly-diagnosed/<br /><br />The author talks about how important it is to get a Speech Language Pathologist with the proper knowledge and experience with Childhood Apraxia of Speech. <br /><br />A quote: "So if you are a parent of a young child who is diagnosed with Childhood Apraxia of Speech and you are searching and searching for answers and opinions, stop now. Find yourself an excellent Speech Language Pathologist with the proper experience and start therapy immediately."<br /><br />SusanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8432201620927412756.post-88257541367377824322012-01-05T06:25:57.468-08:002012-01-05T06:25:57.468-08:00I have no experience or advice to offer, but I lik...I have no experience or advice to offer, but I liked reading your post. Millie makes me smile whenever I see her. She definitely has "tons of personality"!<br />-Jen FrazerAnonymousnoreply@blogger.com